DISQUS

Charlie · 3 months ago

Uuggh.. the system itself takes more patience then I have ever had to give to my 12 yo. Its amazing that with all the hoops and red tape there is that anything gets done. The hours upon hours that my wife spends on the phone. Recently the daytime nursing was pulled and just to get it reinstated has taken about 18 hours of phone calls and that doesnt even include costs for faxing paperwork and the such.

Andy Warner · 3 months ago

This is an excellent reminder regarding the limitless life we live. Thanks for sharing Ben.

I grew up with an uncle who had down's syndrome. Wade was definitely unaware he had a genetic disorder. Wade lived his life to the fullest every day... and my grandmother were not permit him to live it any other way.

At a very young age (according to my mother and knowing my grandparents this has to be true), my grandmother told my uncle and his three "normal" sisters never to settle for less. Do not be hindered by societal limits OR mental limits. Go for it! Keep in mind, doctors were not sure my uncle could speak or hear at the time at doubt he ever would.

(And my grandparents expected nothing but excellence)

Fast forward 30+ years...

Wade is a local amateur bowling champion consistently winning tournament after tournament against "normal" people, works 9-5 at a local gas station and grocery store and he cannot walk through town or visit a local restaurant without people recognizing him or he not making a new friend.

Wade was definitely resilient and lived life to the fullest.